Pediatric
Dialysis and Disaster Preparedness
The
Kidney Community Emergency Response (KCER) Coalition hosted
a community partner meeting in August 2009 to encourage stakeholders
to share issues relating to disaster preparedness relating to
nephrology.
One critical
area of concern is for the disaster preparedness and response
capabilities of pediatric nephrology patients and providers.
Pediatric dialysis patients are more limited in finding treatment
locations than adult dialysis patients. This limitation drives
a greater need for a higher level of disaster preparedness for
this population.
The KCER
Coalition would like to collect or develop new resource targeting
disaster preparedness for pediatric dialysis patients and providers.
We understand that some providers already have an education
program for patients and families. The KCER Coalition wishes
to strengthen existing programs and provide additional resources
for those providers in need.
We would
like you to participate on a small committee to evaluate the
current need for pediatric dialysis disaster preparedness materials
by evaluating a sample packet of information. These resources
are a mix of dialysis and disaster related materials for children.
The KCER
Coalition would appreciate any feedback you have relating to
this and we encourage new ideas and the sharing of resources.
We would like to host a teleconference to discuss these packets
and new ideas.
List
of pediatric programs (Thank you to the
ESRD Networks for developing and sharing this resource)
List
of resources:
